Greetings to our myeloproliferative neoplasm (MPN) patients and dear friends! We would like to tell you a little about one of our new research projects and invite you to participate. Patients with types of MPNs including essential thrombocythemia (ET), polycythemia vera (PV), and myelofibrosis (MF) such as you often experience severe symptom burden including fatigue, abdominal complaints, nausea, weight loss, and constipation. Growing evidence indicates that there are alternatives to traditional pharmacologic therapy that may help to improve these symptoms. To date no research endeavors have investigated the impact that different foods may have in MPN patients.
This research project, entitled the NUTRIENT Trial (NUTRitional Intervention among myEloproliferative Neoplasms Trial), is designed to evaluate how changes in nutrition can help control MPN disease-related symptom burden. In this first part of our study, we have created a survey to help us understand the dietary needs, habits, and preferences of individuals with MPNs. The link to the survey can be found at:
We ask that you consider partnering with us to improve our understanding of nutrition in individuals with MPNs by completing this survey. We ultimately plan to use this information to develop a nutritional intervention to see if we can change how you feel.
This survey will take an average of 10-15 minutes to complete, although some people make take longer. We do not ask for any sensitive or personal information in this survey, but we do ask about features associated with your MPN disease, what symptoms you are experiencing, your dietary habits and preferences, what supplements you may use, and what dietary needs may not be met (such as weight loss).
We thank you for your time and commitment to improving the lives of MPN patients around the world.
Robyn Scherber MD, Angela Fleischman, MD,PhD & Ruben Mesa, MD