Other MPN Support Groups and related Organizations
MPN Quality of Life Study Group Website
The Myeloproliferative Neoplasm Quality of Life Study Group, headed by Dr. Ruben Mesa of the Mays Cancer Center, is a collaboration amongst leading MPN physicians and researchers from some of the most prestigious institutions in the world, including the Mays Cancer Center at UT Health San Antonio MD Anderson, Arizona State University, University of Arizona, University of California Irvine, and the Mayo Clinic.
The Myeloproliferative Neoplasms Research Consortium (MPN-RC), funded by the National Cancer Institute (NCI), has launched a new website showcasing our innovative laboratory and clinical research to cure MPNs. You can find information on our collaborative efforts to translate findings from our laboratory based studies into novel clinical trials to evaluate treatments for patients living with MPNs. Visit MPN-RC to read more about our exciting research and our leaders who are spearheading this important research and subscribe for updates.
MPN Voice is a MPN support network in England managed by Dr. Claire Harrison of Guy’s and St.Thomas and a team of patient volunteers. Their mission is to provide health information, emotional and social support to all MPN patients.
Canadian MPN Group
The Canadian MPN Group was founded by hematologist working in the field of MPNs as the first national collaborative effort between health professionals in Canada to improve MPN Patient care and research.
MPN Alliance Australia
MPN Alliance Australia increases awareness and understanding of MPNs, supports MPN patients, and advocates on behalf of the Australian MPN community
MPN España increases awareness and understanding of MPNs, supports MPN patients, and advocates on behalf of the Spanish MPN community
|Leukemia & Lymphoma Society
www.lls.org L&L S is the largest voluntary health agency dedicated to blood cancer and funds lifesaving blood cancer research around the world.
|MPN Education Foundation
www.mpninfo.org The Foundation promotes collaboration in the scientific community to accelerate research, and serves as a powerful advocacy group for patients and families. MPN-NET is the global online support and education list for patients, families, researchers and physicians.
|MPN Research Foundation
www.mpnresearchfoundation.org/ The MPN Research Foundation was founded by patients, for patients with a single goal: to stimulate original research in pursuit of new treatments — and eventually a cure — for polycythemia vera, essential thrombocythemia and myelofibrosis, known collectively as myeloproliferative neoplasms (MPN).
|NORD – National Organization for Rare Disorders
www.rarediseases.org The National Organization for Rare Disorders is committed to the identification, treatment and cure of rare disorders through education, advocacy, research and patient services.
www.cancercare.org Cancer Care provides free professional support services for coping and managing the emotional and practical challenges arising from cancer.
|MPN Alliance Australia (MPNAA)
www.mpnallianceaustralia.org.au The Myeloproliferative Neoplasms Alliance Australia (MPN AA) was formed in 2015 by a small group of motivated patients who themselves had a diagnosis of MPN. The patient-led advocacy group collaborates with the Leukaemia Foundation of Australia with the common goal of achieving better outcomes for Australian MPN patients.
|Cancer Support Community
www.cancersupportcommunity.org CSC is a international non-profit organization dedicated to providing support, education and hope to people affected by cancer.
|MPN Advocacy and Education International
www.mpnadvocacy.com The organization focuses on providing educational programs for patients and physicians to improve the lives of those affected by MPNs.
In 2012 these individual groups with the common interest in helping patients and caregivers with Myeloproliferative neoplasms joined together. Their primary goal is to discuss and act on needs and challenges faced by those living with MPNs and to create greater awareness of these rare diseases.