Meditation Trial

Meditation App Flyer Message from Dr. Mesa regarding the Mediation Trial: We are currently conducting a study that explores the practicality and the impact of different strategies (i.e., mobile app, education) to reduce fatigue, MPN-symptom burden and improve quality of life. We are seeking MPN cancer patients, ages 18 and up, to participate. Participants must […]

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myMPN Patient Registry A research project developed to act as a resource for mpn investigation as described below: “We are working with Genetic Alliance’s PEER platform, which allows patients to control with precision who can access their data. Patient privacy is top of mind and this was a key factor in our decision making. We also appreciate […]

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MPN Landmark Survey

The purpose of this study is to evaluate the safety, tolerability, and efficacy of the combination of INCB050465 and Ruxolitinib in subjects with myelofibrosis. To obtain further study eligibility details and locate a clinical research site that is participating in this study, please call the Incyte Corporation Call Center [Phone: (855) 463‐3463] or review the […]

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Greetings to our myeloproliferative neoplasm (MPN) patients and dear friends! We would like to tell you a little about one of our new research projects and invite you to participate. Patients with types of MPNs including essential thrombocythemia (ET), polycythemia vera (PV), and myelofibrosis (MF) such as you often experience severe symptom burden including fatigue, […]

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Next Online MPN Yoga Study

The results of this second phase will provide the data needed to submit a large effectiveness trial to the National Institutes of Health, National Cancer Institute. This will be a partnership between Mayo Clinic, ASU, and Udaya in the hopes of providing a non pharmacological complementary approach to symptom management in MPN patients. This study […]

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MPN Landmark Study

In March 2016 our MPN Education Foundation represented by David Alexander and Antje Hjerpe met with our MPN coalition members: CancerCare, Cancer Support Community, Leukemia&Lymphoma Society, NORD, MPN Advocacy & Education and MPN Research Foundation in Scottsdale, Arizona to discuss the findings revealed in the Landmark Survey comprised of 207 MF, 380 PV and 226 […]

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