Other MPN Support Groups

Other MPN Support Groups and related Organizations

MPN Voice
A MPN support network in England managed by Dr. Claire Harrison of Guy’s and St.Thomas and a team of patient volunteers. Their mission is to provide health information, emotional and social support to all MPN patients. For further information go to www.mpdvoice.org.uk/
http://www.mpnvoice.org.uk/get-involved/events.aspx

MPD-RC
The MPD Research Consortium is a National Cancer Institute supported project involving 50 International MPN Centers in the United States, Canada, Europe and Israel. It is a resource for both patients and physicians focusing on advancing the science and therapy of myeloproliferative neoplasms. http://mpdrc.org

Canadian Patient Advocacy Group-Canadian MPN Network
canadianmpnnetwork@gmail.com

Genny’s Hope Foundation
www.gennyhope.org

The MPN Coalition
www.myelofibrosisawareness.org

The Australian Group
MPD-OZ
Ken Young
info@mpd-oz.org
http://mpd-oz.org/

 

Leukemia & Lymphoma Society Leukemia & Lymphoma Society
www.lls.org L&L S is the largest voluntary health agency dedicated to blood cancer and funds lifesaving blood cancer research around the world.
MPN Education Foundation MPN Education Foundation
www.mpninfo.orgThe Foundation promotes collaboration in the scientific community to accelerate research, and serves as a powerful advocacy group for patients and families. MPN-NET is the global online support and education list for patients, families, researchers and physicians.
MPN Research Foundation MPN Research Foundation
www.mpnresearchfoundation.org/ The MPN Research Foundation was founded by patients, for patients with a single goal: to stimulate original research in pursuit of new treatments — and eventually a cure — for polycythemia vera, essential thrombocythemia and myelofibrosis, known collectively as myeloproliferative neoplasms (MPN).
ORD - National Organization for Rare Disorders NORD – National Organization for Rare Disorders
www.rarediseases.org The National Organization for Rare Disorders is committed to the identification, treatment and cure of rare disorders through education, advocacy, research and patient services.
CancerCare Inc. CancerCare Inc.
www.cancercare.org Cancer Care provides free professional support services for coping and managing the emotional and practical challenges arising from cancer.
MPN Alliance Australia MPN Alliance Australia (MPNAA)
www.mpnallianceaustralia.org.au TThe Myeloproliferative Neoplasms Alliance Australia (MPN AA) was formed in 2015 by a small group of motivated patients who themselves had a diagnosis of MPN. The patient-led advocacy group collaborates with the Leukaemia Foundation of Australia with the common goal of achieving better outcomes for Australian MPN patients.
MPNAA@mpnallianceaustralia.org.au
Ken Young’s Email support list: info@mpd-oz.org
Cancer Support Community Cancer Support Community
www.thewellnesscommunity.org CSC is a international non-profit organization dedicated to providing support, education and hope to people affected by cancer.
MPN Advocacy and Education International MPN Advocacy and Education International
www.mpnadvocacy.com The organization focuses on providing educational programs for patients and physicians to improve the lives of those affected by MPNs.

In 2012 these individual groups with the common interest in helping patients and caregivers with Myeloproliferative neoplasms joined together. Their primary goal is to discuss and act on needs and challenges faced by those living with MPNs and to create greater awareness of these rare diseases.