News & Events

Events

MPN Advocacy & Education International Calendar of Events

Click here to view the MPN Advocacy & Education International Calendar of Events


News

Participate in Studies

Please check the MPN-QOL site for ongoing studies with open participation.


MPN-RC

The Myeloproliferative Neoplasms Research Consortium (MPN-RC), funded by the National Cancer Institute (NCI), has launched a new website showcasing our innovative laboratory and clinical research to cure MPNs. You can find information on our collaborative efforts to translate findings from our laboratory based studies into novel clinical trials to evaluate treatments for patients living with MPNs. Visit MPN-RC to read more about our exciting research and our leaders who are spearheading this important research and subscribe for updates.


MPN Quality of Life Study Group Website

The Myeloproliferative Neoplasm Quality of Life Study Group, headed by Dr. Ruben Mesa of the Mays Cancer Center, is a collaboration amongst leading MPN physicians and researchers from some of the most prestigious institutions in the world, including the Mays Cancer Center at UT Health San Antonio MD Anderson, Arizona State University, University of Arizona, University of California Irvine, and the Mayo Clinic.  Check out their work today!


National Organization of Rare Diseases

Stories about 3 patients (Antje with ET, Annette with PV and Bill with MF) on the NORD website.


Are You a Vietnam Veteran?

Were you exposed to Agent Orange? Do You Have Myelofibrosis (MF), Polycythemia Vera (PV) or Essential Thrombocythemia (ET)?

MPN Advocacy and Education International is conducting a survey of Vietnam Veterans to determine how many were exposed to Agent Orange and now have a diagnosis of Myelofibrosis, Polycythemia Vera, or Essential Thrombocythemia (Myeloproliferative Neoplasms- MPNs. This information will be collected in an attempt to add myeloproliferative neoplasms to the US Department of Veterans Affairs ‘presumptive’ list of conditions resulting from exposure to Agent Orange/dioxin during the Vietnam War and could create a resource for assistance with treatments and compensation.

This is our first step in what could allow for further research into the link between myeloprliferative neoplasms and exposure to Agent Orange/dioxin.

Please contact Ann Brazeau.